Baby Mark Jr. Needs an Organ Donor for a Small Intestine, Liver and Kidney Transplant

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submitted on December 1, 2010 4:04 PM EST
Name: Ed Fennell
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Where are you from? West Sand Lake, NY
Comments: I am grandfater and care giver of a special needs grandchild (age4). We just welcomed a baby sister to the world 11/20 who lost all her bowels in the same fashion. We had planned to take her home with us when mom went back to work. You can be sure that Marky will live in our memory as our first teacher on the importance of organ donation. We can be reached at our email or our website haleyandpoppy.com. Thank you so much for this site.
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submitted on December 1, 2010 4:01 PM EST
Name: Ed Fennell
Email Address: haleyandpoppyl@nycap.rr.com
Where are you from? West Sand Lake, NY
Comments: I am grandfater and care giver of a special needs grandchild (age4). We just welcomed a baby sister to the world 11/20 who lost all her bowels in the same fashion. We had planned to take her home with us when mom went back to work. You can be sure that Marky will live in our memory as our first teacher on the importance of organ donation. We can be reached at our email or our website haleyandpoppy.com. Thank you so much for this site.
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submitted on October 7, 2010 3:42 AM EST
Name: fmorin
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submitted on April 20, 2010 1:40 PM EST
Name: mimi altieri
Email Address: miriamsplayhouse@hotmail.com
Where are you from? Tallahassee
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submitted on April 7, 2010 4:26 AM EST
Name: Jessica
Email Address: jwork0922@vcat.cvcc.edu
Where are you from? North Carolina
Comments: Bless you all and that sweet baby. It tore my heart up to read this but opened my eyes at the same time. God bless you and Your family
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submitted on March 4, 2010 4:01 PM EST
Name: Staci Golden
Email Address: mygiftoflife@aol.com
Where are you from? Ellsworth,Maine
Comments: I recieved a small intestinal transplant on 10/10/07.
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submitted on January 28, 2010 6:30 PM EST
Name: tammy wilson
Email Address: twilson@dragosupply.com
Where are you from? lufkin texas
Comments: Your story touched my heart and i am so sorry for your lose. It helped me relize just how important it is to donate. I lost my little sister and my mother donated her organs and it was hard on me at first but after i read different stories i understand how it helped so many people.I only wish i could meet the people that received them but i have no ideal where to began to look for them. But i hope the lord helped them and they now have a special heart inside them. God bless you and thank you for your letter that i just read.
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Name: Stacye Baldwin
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submitted on January 5, 2009 6:22 PM EST
Name: Abigail Terry
Email Address: Sportsluver2577@yahoo.com
Where are you from? Portage Michigan
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How did you hear about this site? A research project for school, and my subject is Organ Donation.

submitted on December 23, 2008 12:20 PM EST
Name: Bill Myers
Email Address: bmyersemail@yahoo.com
Where are you from? San Jose, Ca
Comments: Baby Mark, I know yesterday was the anniversary of the day you went to heaven. I know you are happy and secure their and are awaiting the day you reunite with your family. This year has brought tremendous change to our lives, but we are grateful for all we have as we are truly blessed. In my work I stay at a hotel right aroung the corner from the Triverton House where we stayed when we came to see you when you were at UCLA. I am reminded of that time everytime I go their and think of you. I also remember having lunch in the cafeteria at the UCLA medical center with your Dad and him telling me that he had learned from this experience that the best problems to have in life are those that money could solve. He simply felt powerless to help you and had to let you go. Your parents put up such a valiant fight for you and I have such love and admiration for them. It took such courage for them to make the journey they did and I respect them very much. You are truly blessed to have such a wonderful family. Love Bill.
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Name: Bobbi jo
Email Address: bmoyta@yahoo.com
Where are you from? florida
Comments: I just came across your site and am trying to wipe away the tears to write. My boyfriend had kidney failure and was able to get a donar after a years time. Baby mark your story has touched my heart and I thank you for sharing it with the world so they can become more aware of how important it is to donate life. I will see you soon also in heavan honey. God Bless your family.
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Name:
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submitted on May 10, 2008 2:07 PM EST
Name: Ginny
Email Address: ginnyleez@aol.com
Where are you from? Las Vegas
Comments: God bless you as you remember little Mark this Mothers' Day. I know your broken heart as we lost our baby grandson, Colin, at 7 1/2 months on April 4, 2005. He had HLHS and was born with no left ventricle. He fought valiantly, and we miss him terribly as you do Mark. I am crying because I know your pain. Colin was a tremendous blessing to us and will always be an important part of our family as Mark is to yours. It is amazing the strength these sick little ones seem to have----and we can feel their love and connection to their families even though they go through so much. Someday we will all meet in heaven and our sadness will be gone. Celebrate Mothers' Day knowing that Mark is in a wonderful place even though you miss him terribly.
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submitted on May 9, 2008 7:11 PM EST
Name: Mandalia Warford
Email Address: miss.mandalia@yahoo.com
Where are you from? Las Vegas, NV
Comments: I send my love to Baby Mark Jr. and to his parents and loved ones. There is so much beauty in strength in the heart. You have touched my life and I know you will continue to touch others from here to eternity. Heaven sent blessings from my soul to yours.
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submitted on May 9, 2008 8:01 AM EST
Name: Steve
Email Address:
Where are you from?
Comments: I believe that imagination is stronger than knowledge. That myth is more potent than history. That dreams are more powerful than facts. That hope always triumphs over experience. That laughter is the only cure for grief. And I believe that love is stronger than death. - Robert Fulghum
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submitted on May 8, 2008 11:30 PM EST
Name: Uncle Bill
Email Address: bmyersemail@yahoo.com
Where are you from? Campbell Ca
Comments: Marky, I can't add too much to what Aunt Lisa said, except that you taught us all about acceptance as you always were looking outside of yourself. I remember that most about you, how your eyes were all knowing and loving and looking at everyone and everything around you. I am sure you are looking down on us all and helping us all through everyday. Your parents have been an inspiration to me as I have watched and learned from their grace. We all miss you very much. Someday we will all be together and can play in heaven. Love, Uncle Bill
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submitted on May 8, 2008 9:00 PM EST
Name: Aunt Lisa
Email Address: lisabodensteiner@yahoo.com
Where are you from? Campbell, CA
Comments: Dear Baby Marky, My Godson, You are in my thoughts with your 4th birthday tomorrow, May 9, 2008. It is remarkable to me today that your message and website continue to touch so many lives every day in interesting and powerful ways. Earlier this year, your website caused us to reconnect with our childhood neighbors from Reno with whom we had lost touch with for 30 years – truly a miracle. Your Mom and Dad continue your life’s work by dedicating their time and resources to spreading the word about organ donation through the Second Chance Foundation (http://www.secondchancefdn.org). Your short physical life was and continues to be incredibly meaningful. Your spirit, your message on this website, and your parents work with the Second Chance Foundation has saved lives through creating new organ donors, educated, consoled, brought joy, created connections, and created miracles. We miss your physical being and long to see you as an adorable 4 year old boy with that amazing smile. But, you had more important work to do for all of us that could only be accomplished in heaven. We feel your spirit with us every day. I love you, your Godmother, Aunt Lisa Currently there are 98,000 people waiting for the "Gift of Life". Each day 70 people receive an organ transplant. Each day 17 people die because there are not enough organs available. Every 16 minutes a new name is added to a waiting list.
How did you hear about this site? Inspired by my Godson Mark Jr.

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submitted on April 17, 2008 12:02 AM EST
Name: Lee
Email Address: danlee323@yahoo.com
Where are you from? Ohio
Comments: I am so sorry for the loss of your precious baby, may all the prayers that have been given, help you find comfort, and know that Marky is sitting in the hands of God.
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submitted on March 9, 2008 9:00 PM EST
Name: Steve
Email Address: sierra_tahoe at msn dot com
Where are you from? Raised in Reno
Comments: First of all, I would like to express my sympathies for the loss of Baby Mark. I was very touched as I browsed the website dedicated to this child. Thank you for sharing your family, and their love for this boy. Sara, you have a beautiful family. Your family of origin was there for my brother and me in our time of need, and I’ve never forgotten that fact - thank you. I remember the Bodensteiners as being generous and strong of character. Looking at the family photos brought back fond memories of growing up together on the cul-de-sac: swimming, riding bikes, playing basketball, and games of “Capture the Flag” or “Hide-and-go-Seek” on warm summer nights. I remember each one of you, and the time that we shared together. I’m happy to see you all once again, and the smiles on your faces.
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submitted on January 15, 2008 1:01 PM EST
Name: Bronwyn Dobbins
Email Address: bdobbins35@yahoo.com
Where are you from? Texas
Comments: My 4 1/2 month old niece is being evaluated this week to be put on the transplant list for intestines and liver. She was born with severe gastroschisis and her intestines were so mangled at first and she was in such grim condition that they actually said she would die within the first couple weeks because there was nothing they could do. Needless to say, she is a fighter and her own body slowly liquified and cut off the blood supply to the mangled intestines until there was nothing left. Each day the doctors would come in 2 - 3 times and unwrap her abdomen and wipe away the mush until it was essentially gone. She went home on Dec. 14th and for now is doing well. She has an opening in her abdomen that cannot be closed about 4 inches long and 1/2 inch wide which requires a colostomy bag because her stomach drains into it. The will repair her stomach and close it at the time of transplant. When I opened this sight it immediately brought tears to my eyes because your son so reminds me of my niece and I hated to see that his fight ended so soon. What a beautiful blessing he was! I know he is in heaven and very proud right now of the strength his family shows and the continued fight for awareness for children needing a voice. My family too is on a mission to bring awareness to donating organs. I imagine the choice to donate a childs organs is heartwrenching but it could ultimately save so many others. I do believe it is a decision that needs to be made well before people are in a circumstance where it is a possibility. And I thank you for doing all that you have done and continue to do in Mark's name. My family will keep yours in our prayers and may God bless you abundantly!
How did you hear about this site? search on intestine transplants

submitted on December 17, 2007 9:19 AM EST
Name: sonii
Email Address: sonii_0009@yahoo.co.in
Where are you from? india
Comments: i m sonii female india 21yrs old i want to donate my kidney or liver plz contact me sonii_0009@yahoo.co.in 09329857576
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submitted on December 8, 2007 9:31 PM EST
Name: Sue Wintz
Email Address: swintz@gmail.com
Where are you from? Mesa, AZ
Comments: Marky is a beautiful child and I am certain he is lighting up heaven with his smile. Our daughter was a preschool teacher and a donor 3 months short of her 18th birthday. I am certain she is caring for Marky until you see him again and hold him in your arms. Blessings to you. The Celebration of a Passionate Life http://www.geocities.com/swintz85044/Sarah_Elizabeth.html
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submitted on October 15, 2007 11:37 AM EST
Name: MIKE LUGO
Email Address: MIKELUGO2002@HOTMAIL.COM
Where are you from? ATLANTA GA
Comments: My 3 month old daughter is going thru a very tough time, she has down syndrome,heart defects, short gut, it is a verry sad, time for us, living 1 day at a time, knowing that my betifull daughter might not be in these world tomorrow, it is the most dramatic upsetting thing for me the father and my 3 other childrens, and my wife, not to able to do anything about these, and just to wait untill my 3 month old, little amanda, no longer wants to keep foghting for her life, it is verry depressing to have to tell my kids that amanda our little angel might have just came to visit us for a short time, and that God might have to take her with him soon..........please pray for all the families that are going thru these, and i will pray for all of u that has gone thru these or agoing thru it now. God be with all of u and with us, God blesses us every day we see amanda smiling, and she will smile at us even after she is no longer with us.
How did you hear about this site? internet

submitted on October 11, 2007 1:21 AM EST
Name: james zandarski
Email Address: jmz1966@verizon.net
Where are you from? pennsylvania (u.s.a)
Comments: i have a best friend, he is 18 years old and has m.s. he he is currently fighting for his life because 90 percent of his small intestine was removed because it died. and the remaining pard might not be saved as well. The family is worried about him very much and the outcome of his prognosis. he is scheduled for another surgery on thursday morning to find out if his remaining sm. intestine can be saved.
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submitted on July 28, 2007 4:52 PM EST
Name: aonymous
Email Address: doesntmatter@yahoo.com
Where are you from? USA
Comments: Recently saw your son's resting place is now beautifully marked. Thank you.
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submitted on July 28, 2007 11:15 AM EST
Name: anonymous
Email Address: doesntmatter@yahoo.com
Where are you from? USA
Comments: Your baby did and still does so much good for others. Is his final resting place not permanently marked for a reason? This deeply concerned me.
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submitted on July 10, 2007 11:38 AM EST
Name: Donna P
Email Address: catdevil27@yahoo.com
Where are you from? California
Comments: On July 4th 2007 my perfect, beautiful grand daughter, Jalina, 5 months old was pronounced brain dead after a head trauma. My daughter and son-in-law donated her organs. I found this site searching for reassurance that this was the right thing to do. I do believe it was. God bless your family and perhaps Marky and Jalina will meet in heaven.
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submitted on July 4, 2007 6:20 PM EST
Name: Aisha Nadra
Email Address: think.reciprocity@gmail.com
Where are you from? Minneapolis, Minnesota, USA
Comments: My heart was so touched when I happened upon your site. Tears are streaming down my face as I think upon your photos & the struggle you faced for life. I will remember you & pray for those who loved you so... Peace & Blessings... aisha
How did you hear about this site? Internet Search about Living without a Small Intestine

submitted on June 16, 2007 8:45 AM EST
Name: ALA OWERRI
Email Address: OWERRI@MSN.COM
Where are you from? USA
Comments: THIS IS AN INTRESTING SITE WITH ALOT TO LAERN FROM IT.I WILL COME VISITE AGAIN.
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submitted on June 7, 2007 4:38 PM EST
Name: Colleen Belanger
Email Address: Nephroditee@aol.com
Where are you from? Palm Bay, Florida
Comments: God Bless your family and loved ones.
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submitted on May 8, 2007 9:22 PM EST
Name: Twanna Cooksey
Email Address: twannacooksey@bellsouth.net
Where are you from? Lafayette, LA
Comments: Thank you for sharing the story of your baby. My cousin in Dallas has established a foundation in the name of their son Chris Elder to raise money for organ donor awareness. Their walk-a-thon is this month. God Bless you and your family.
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submitted on April 20, 2007 2:12 PM EST
Name: Ted Cochran
Email Address: ted@myangelfoundation.org
Where are you from? Des Moines, Iowa
Comments: What a beautiful site! This past August 29th, I received a second chance at life via the ways of a kidney transplant. My loving and amazing mother was my living donor! Wanting to become an advocate for the very thing that saved my life, organ donation, and a passion to honor my mother's amazing gift I founded a non-profit foundation called My Angel Foundation - www.myangelfoundation.org. The foundation has recently launched a blog called Revive Hope - www.revivehope.com. Revive Hope's focus is to revive hope by creating inspiration. The blog will have postings of inspiring stories about individuals directly affected by organ and tissue donation, provide information about organ and tissue donation, and inspire those who view the site to give hope through compassion! I truly believe your story will inspire others to consider becoming an organ donor. I will be posting a blog next week that will link back to your website. God Bless You and Your Family!!! I
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submitted on April 5, 2007 2:29 PM EST
Name: pat gutierrez
Email Address: pat_rudy1955@yahoo.com
Where are you from? san antonio,texas
Comments: I'm so very sorry about your baby passin away..this is a very hard time for our family,our grandaughter who will trun 1 on 4/24/07 has just gotten listed for a liver transplant.we are very scared..God Bless you and your family..Your baby is an angel in heaven now....
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Name: ...
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submitted on January 31, 2007 9:55 AM EST
Name: Mary Charles Jacobs
Email Address: mary_jacobs@bellsouth.net
Where are you from? Mt. Olive, North Carolina
Comments: We have a grandbaby with the same issues as Baby Mark. Her name is Morgan. You can go to www.carepages.com and go to Morganjacobs. Morgan was not born with enough small intestine and is having complications with liver now.
How did you hear about this site? Internet

God Bless You and Your Family